Guest Bloggers

Ginny Mason, BSN, RNGinny Mason BSN, RN
Inflammatory Breast Cancer Research Foundation

Ginny is the Executive Director of the Inflammatory Breast Cancer Research Foundation (ibcRF), a lay advocacy organization dedicated to the advancement of inflammatory breast cancer (IBC) research, leading to finding its cause/s and improved treatment as well as increasing awareness of IBC and its symptoms to advance detection and diagnosis.

Following her own diagnosis and treatment of IBC in 1994, Ginny became involved in breast cancer advocacy work on a local level while working full-time as a mental health nurse. After completion of her bachelor’s degree in nursing in 1999, she began volunteering with the newly formed IBC Research Foundation, while continuing to work in out-patient mental health as well as local breast cancer work. In 2001, a move and job change allowed her to devote more time to the Foundation. Duties included responding to calls to the Foundation’s toll-free phone line, answering questions directed to the website, attending conferences. She also became a member of the Board. As the organization grew, Ginny was invited to become the organization’s first Executive Director in May 2003, devoting full-time attention to the work of the IBC Research Foundation in the areas of advocacy and research. 

Ginny has served as a consumer reviewer and ad hoc Integration Panel member for the Congressionally Directed Medical Research Program (CDMRP) reviewing breast cancer research grants managed by the Department of Defense. She has also reviewed grants for the California Breast Cancer Research Program and served as an advocate moderator for the International Breast Cancer Congress and NCI Translates meeting. Ginny served a four year term on the Food and Drug Administration Oncologic Drugs Advisory Board as a consumer representative. She is a member of the Oncology Nursing Society, National Breast Cancer Coalition, American Society of Clinical Oncology, American Association for Cancer Research and Sigma Theta Tau Nursing Honor Society. She is a graduate of Eastern Mennonite University, Harrisonburg, Virginia. 

Ginny lives with her husband in Indiana.  They have one daughter (also a breast cancer survivor), six granddaughters and have lost two grandchildren to a rare heart arrhythmia problem.

4 Responses to Guest Bloggers

  1. Pingback: Who is the Inflammatory Breast Cancer Research Foundation? | Amoena Lifelines

  2. Nanci says:

    I was diagnosed in 1996 with Inflammatory Breast Cancer and had a biopsy and a round of chemo. before having a mastectomy. There was very little information available to help me understand and deal with this rare form of cancer. I did find the online support group very helpful. It was a small group of women, dealing with various stages of the disease. The group grew to include family members and caretakers. I am very interested in current research in this specific area of breast cancer. My doctor has said that research is not focused on this because of the rarity of the disease plus the lack of subjects to follow.

    • Ginny says:

      Nanci….I totally understand how frustrated you were at diagnosis. My diagnosis was in 1994 and there was almost no information available then. That’s why I wanted to be a part of an organization that would make information easily available and would also focus on research. I hope you’ll check out the IBC Research Foundation website: http://www.ibcresearch.org and sign-up for the free e-newsletter so you can follow what’s happening in the IBC community. Thanks for your comment.
      Ginny

  3. Pingback: What’s So Different About Inflammatory Breast Cancer (IBC)? | Amoena Lifelines

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